Blog for Jackie Sue while at the Mayo Clinic, Rochester, MN. UPDATED. This blog now covers her progress after her mini-allo MUD transplant. Her transplant was the first one to be performed by the Mayo Clinic.

Thursday, March 30, 2006

Transplant -13 (Thursday)

Today Jackie had one of two preliminary Rituxan treatments. It required most of the morning. She tolerates these treatments reasonably well. Her next treatment is scheduled for next Wednesday. At that point the transplant process begins in earnest.

We spent about 2 hours this afternoon with one of the transplant nurses. I guess you could call it an indoctrination session. She explained the general routine and covered how she felt Jackie might progress (or not). When she learned that Jackie's donor was a 10 point molecular match she seemed very relieved. She said this was very unusual and she felt Jackie would make better progress. She said that they do transplants with as little as a 4 point match. She stated those patients usually had a difficult time.

I think the biggest point she tried to make was just how drained and tired Jackie would feel during the transplant. It seems there will be a 3-4 week process when Jackie will not want to get out of bed. She impressed upon on us the necessity of being active so as to avoid pneumonia. Jackie will be treated as an outpatient. She will go inpatient only when she faces a complication or is too sick to live at the apartment. The center here at the Mayo is unique in that respect. You can go from inpatient to outpatient status simply by showing up at the transplant desk and saying, "I want in". The process is very transparent.

We did learn a couple of things today we didn't know (or we had forgotten). On the actual day of the transplant Jackie will get a preliminary 4 hour course of IV fluids through her surgically implanted Hickman port, then the transplant, and then another 4 hours of IV fluids. The do this to protect her kidneys by constant flushing.

As a note of interest Jackie's blood type will change after the transplant to match that of the donors (if his type is different than what she now has). When you realize that your blood type - the one you were born with, will completely change for the rest of your life it kind of crystallizes just how life altering a transplant will be!

2 Comments:

Anonymous Anonymous said...

we are glad to hear the nurses comments that Jackie is such a good match w/ the donor. BTW on the mpg in the bimmer you must have slipped some of that "rocket fuel bullet mixture" into the tank to get 26mpg......

1:09 AM

 
Blogger Tami said...

Jackie and Bruce, So glad that you made it back safely. Jackie it was so good to see you while you were home. That is such great new and comforting news about that your points on the match is so high and the nurse was pleased to know that. That is such a answered prayer. In our bible study we prayed for such a perfect match for you. God is so awesome. He wants us to ask specificly what we need. It was so neat the other day when I was doing my bible study (Beth Moore) made a comment in her book that said: "That the most dramatic "Cure" for certain cancers is a bone marrow transplant." God gave me such peace for you that day. I hope he does you too. I have such peace that God is going to be with you everyday. I know I have carried on to long. I will go. I love you and will be praying for you.

7:15 AM

 

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