Blog for Jackie Sue while at the Mayo Clinic, Rochester, MN. UPDATED. This blog now covers her progress after her mini-allo MUD transplant. Her transplant was the first one to be performed by the Mayo Clinic.

Tuesday, June 06, 2006

Tuesday +54 (10:30 PM)

Jackie had another so-so day. She was less nauseated, but still didn't feel well much of the day. A lot of time was spent on the sofa and in bed. Again, as the day improved she felt better.

We spoke with the neurologist this morning. The MRI scans were normal. She shows to have a small amount of arthritis, "but nothing to write home about". He feels much of her back pain is due to the CMV virus. This probably makes sense because she often describes her pain as being similar to flu-like symptoms. In order to better battle the CMV virus they are tapering off the Mycophenolate dosages. This is one of the anti-rejection drugs. They plan to taper her at the rate of 250 mg every 5 days. Currently she is at a daily dosage of 2250 mg per day. So, as you can see it will be a long time before this medication is completely gone.

Jackie's blood counts recovered somewhat today. Her RBC (Hgl) improved to 9.6 from 9.3 yesterday. Her WBC count improved to 2.2 from 1.9 yesterday. Her platelets improved to 165 (one short of her record 166) from 148 yesterday. As I've said many times, if her CMV problem can be solved I think her blood counts will skyrocket. The Ganicyclovir severely depresses blood counts. Of course the CMV itself depresses the blood counts.

I've included a few photos of the inside and outside of the Mayo Clinic. You can click on any of the images for a larger version. The photos of the artwork are from some very famous artists. The flowers are by Andy Warhol (there are actually 9 paintings). The other painting is by Joan Miro. I don't know the value, but it is likely that the combined values would be in the millions. People walk by them everyday and pay absolutely no attention to them. I've suggested to a few nurses they load them into a pickup truck and take them to Southeby's Auction in NY where they can be sold and the money placed toward the construction of a cafeteria! The Warhol paintings are directly across from what passes for their version of a cafeteria. To bad David Geffen wasn't into cooking (instead of auditoriums). The photo of the lamps is part of their collection of Louis Comfort Tiffany work. Again, I don't know the value of the lamps, but I've seen ones like this on the Antique Roadshow. As I recall, a lamp like one of these is valued in the low hundreds-of-thousands...just enough to buy a good hot dog steamer and soft serve ice cream machine:)


Anonymous Anonymous said...

Good job on the photos. I enjoyed seeing them. The displays are really nice..I particularly like the Tiffany lamp, of course.

I have a friend who gets very car sick. She says that eating Fritos and mustard helps. Sounds wierd, but thought I would pass it on.

On the neck pain, I guess you've tried changing your pillow at night? I saw a real neat one that is made of all natural wool fleece and hemp, (inside, of course). It is designed so it has a built-in neckroll which is supposed to support your neck and prevent back pain. I'm thinking about ordering one. Want me to send one to you to try?

11:22 PM

Anonymous Anonymous said...

You are right- there is a small fortune in art in that lobby. I think maybe the patients going by are not feeling well- so maybe not too interested in looking.
Hope Jackie has a better day today.

5:25 AM

Anonymous Anonymous said...

Even the Country Fever Festival in Pryor Creek, OK hires in a Chef with such entrees as:
Carved Beef Brisket / Honey Cured Turkey / Cajun Prime Rib of Pork / Italian Baked Chicken.

9:01 AM

Anonymous Anonymous said...

I really enjoyed the pics. Bruce, tell them cafeteria folks, that if they need someone to come up there and teach them how to fry some good ole "Fried Chicken and make some gravy", u know some folks in OK that can come on up and give a lesson. My Grandmother Ward and Moma taught me well!!

PS Jackie, I look forward to more videos of you!!

11:10 AM

Blogger Tami said...

Jackie just wanted to say I love you..Hope today is a good day for you. love you too Bruce.

12:35 PM

Blogger Jackie Sue We Love You said...

Thanks for the offer of the pillow. Jackie isn't using any pillow. It seems to be better if she is completely flat. But she says THANKS for the offer.


10:34 PM

Blogger Jackie Sue We Love You said...


Gosh that Grandma Ward food sounds good! If you are up this way get ready to cook!

10:36 PM


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