Blog for Jackie Sue while at the Mayo Clinic, Rochester, MN. UPDATED. This blog now covers her progress after her mini-allo MUD transplant. Her transplant was the first one to be performed by the Mayo Clinic.

Sunday, March 25, 2007

Sunday +342 (Evening)

Well it has been almost a month since my last post to the blog. Jackie has been doing reasonably well. Her blood counts have returned to near normal. She continues to have some difficulty with her stomach/gut/bowel. The problem creates quite a bit of pain, but her prescribed pain pills do a good job of making things manageable.

We thought she might be facing a reoccurrence of C-Diff but the tests (3 so far, a 4th pending) continue to come back negative. We've seen this before. The tests for C-Diff are not very accurate. It may also be some GvHD in her stomach, etc causing the problem. She is taking a form of steroid that is normally used for Crohn's Disease. It keeps her awake at night and causes large mood swings, but she seems to be getting better. Upon return from our last visit to Rochester she felt "normal" for about a week. I think if she can get this stomach pain worked out she will do quite well. Her appetite has returned to normal - or even above normal. Less than a month ago she was eating nothing and now she is craving everything in sight!

In just a few weeks we will pass the one year anniversary of her transplant. For anyone reading this blog and considering a transplant you must realize it is a very long process.

Until later...

Bruce and Jackie
From Pryor, OK


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