Clink Update (Day +747)
Jackie was discharged on Monday. We are headed for home today (Tuesday). I can tell she will be "down" on her non-Prednisone days. They have changed her Prednisone dosage to a total of 30 mg every other day. On her "off" days her body will attempt to make natural steroids. At least this is the hope. On the off days we will probably see her GvHD flare as well. They tell us it will be at least a couple of weeks before the CelCept will kick in and begin to make a difference. Until then she will continue with the moist (wet!) pajama wraps. The warmer climate of OK will probably make this a little easier than MN.
Bruce and Jackie
From Rochester (but for only about another 30 minutes!)