Blog for Jackie Sue while at the Mayo Clinic, Rochester, MN. UPDATED. This blog now covers her progress after her mini-allo MUD transplant. Her transplant was the first one to be performed by the Mayo Clinic.

Tuesday, June 13, 2006

Tuesday +61 (10:00 PM) Through the roof!

I am happy to report that Jackie's counts have once again soared through the roof! Today her RBC (Hgl) increased to 10.5 from yesterday's 9.8. In spite of the good numbers she had a lack of energy. I'm not certain why...because usually this is a real indicator of how she will feel. Her WBC count improved to a respectable 2.3 from yesterday's 1.3 and the prior day's 0.8. This count increase is directly related to the use of Neupogen growth factor. Her platelet counts (and I hope the nurse didn't make a mistake in transcribing them) shot up to a record 223 from yesterday's 121. Jackie probably hasn't seen a platelet this high in 5 years! Hopefully the nurse transcribed it correctly.

In spite of the great numbers Jackie felt tired a lot of the day. She had several bouts of back pain. Rather than occurring early in the morning they began in mid-afternoon. She eventually required a pain pill and some extra sleep but in the end she felt good enough to complain about the way I was doing laundry. She thinks I put too many clothes in the combination washer-dryer. I say if room still exists in the didn't put in too many. If there are any guys reading this weigh in and help me out. The woman all seem to stick together on this subject:)

Of course the increase in numbers can also be attributed to a reduction in the Ganicyclovir and Mycophenolate. We received the results of the latest CMV test today. Although still positive, it had dropped to 2500 from 4000 two weeks ago and 3000 last week. We are hoping that the once-per-day treatment will not lead to an increase in this count. With luck her immune system will begin to fight off the CMV. They will perform another CMV test on either Thursday or Friday of this week. If the number has improved they may discontinue the IV Ganicyclovir entirely and switch to an oral antiviral medication.

Yesterday they performed a chimerism test. We should have the results tomorrow. The last chimerism test revealed that Jackie was 100% donor engrafted. They believe the new test will show the same result. If so, they will likely decrease the anti-rejection drug Mycophenolate even faster than planned last week. I think they would like to induce a little more GvHD to make certain it has been effective in clearing and killing all CLL cells.

I had a long conversation with the nurse today about the transplant center. She has been on the floor and doing transplants for a long time. I remarked that I had seen a lot of people come in very sick and walk out more-or-less healthy. I said that to the best of my knowledge I had yet to see anyone die from the transplant. She confirmed my observation and said it was actually a rare event. I found it interesting that she said one of the difficulties in talking with new friends about her job was explaining to them that she rarely dealt with death. She said the real problem for her comes from people who return to visit "their old friends...the nurses" after being away from the center for six months or year. When they leave they are always bald and when they return they have lots of new hair. She never recognizes old patients because they've changed so much and look so much better - and that makes her feel bad.

So, all-in-all the news is good today. As we have all seen this can change rapidly. Hopefully the good news will continue and she will graduate to clinic status shortly.

The photos were taken on the Skyway that connects our building to the one next door. One photo looks toward the Mayo Clinic. The other photo looks toward the convention center.

Until Later...

Bruce and Jackie
From Rochester, MN


Anonymous Anonymous said...

Great news on the counts! Keep up the good work, Jackie. If this keeps up we will be seeing you at home again soon.

10:49 PM

Anonymous Anonymous said...

Jackie you are doing great job. You have both had a hard fight butI am sure we will see you at home very soon.Saw Tyler in the Grille sunday and he sends his love and good wishes.Said you were a tough cookie so way to go team! love from Jack and Mom

11:36 PM

Anonymous Anonymous said...

Great news !
Keep up the fight
Bruce- You and Dean do laundry the same way[hope that makes you feel better]
Love to Jackie
Sandra and Dean

5:43 AM

Anonymous Anonymous said...

So glad to hear the great blood counts. Big blood counts are good, big loads of laundry are not!!!
Bruce, if you're taking a poll, chalk another one up on your side. Neal also does laundry the way you do. There's another theory about this but I won't post it. Call me and I'll let you know the real reason you guys do laundry this way.

6:40 AM

Anonymous Anonymous said...

Jackie, great to read such great counts. You just keep up the good work and keep telling Bruce not to put so much in the washer. Men!! Hey , did Country Fever in Pryor. It was hot,good music, great food and Jonathon was bull fighting there all four days.


9:30 AM

Anonymous Anonymous said...


You should take Mom's advice, here's why:

- Do not over pack clothes in the washers; clothes should be washed in loose loads.

- Over loading will prevent the soap from getting through the load.

- Over loading can cause lint, holes and soapy streaks on dark clothing.

- An average load should consist of no more than 6 pair of jeans.

Maybe washerhelp should be your new friend :)


11:53 AM

Anonymous Anonymous said...

Glad to hear the numbers are improving. Hey Bruce what is a washer and dryer? BTW, I have heard that all men use too much Clorox, but if you do use too much then the next time you "DO THE WASH" you just have all whites (no need to separate colors anymore). You know, it is always an efficiency thing with guys.

1:49 PM

Anonymous Anonymous said...

Any washed load is a good load.

If they are dry, look clean, and smell clean, who needs more?

Don't sweat the small stuff!

6:55 PM


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