Blog for Jackie Sue while at the Mayo Clinic, Rochester, MN. UPDATED. This blog now covers her progress after her mini-allo MUD transplant. Her transplant was the first one to be performed by the Mayo Clinic.

Tuesday, June 20, 2006

Tuesday +67 (11:00 AM) Evening Update

As you probably already know, Jackie's CMV test was negative today. This is the first time in about 2 months this has happened. Now we need just one more negative test to be in the clear! This morning as we walked to the nurse's station area of the hospital the doctor met us at the door. He said, "You must not have heard the good news! Your CMV test is negative!" I think he was as excited about the test as we were!

We will be meeting with the ID (infectious disease) doctor on Thursday and the transplant doctor sometime this week. They will consult and determine as to whether to take Jackie off IV Ganciclovir and continue with oral Ganciclovir. It is also possible they could take her off the Ganciclovir completely. This is unlikely. She will probably continue with the oral form with a slow tapering of dosage over time.

If Jackie's counts continue to improve I believe they will allow a trip home. We should know something later in the week. With regard to counts they improved today. In spite of this, Jackie still has little energy and continues to have some nausea. Her appetite has been poor and it is always a struggle to eat.

Jackie's RBC (Hgl) count was 10.0 which was improved from yesterday's 9.7. Her WBC count improved fractionally from 1.7 yesterday to 1.8 today. Her ANC level is still very low. It was at 0.78 today. Her platelets improved a great deal to 142 from yesterday's 118.

So for now we continue to keep our fingers crossed for a visit home. Jackie was making comments about "getting packed up" this evening. I think if she finds the energy she will have everything packed and ready over the next couple of days.

For Annie A, Jackie wanted to say אַ דאַנק and was פֿאַרקלעמפּט when she received the gift from her חבֿרטע

Until Later....

Bruce and Jackie
From Rochester, MN


Anonymous Anonymous said...

Good report. Hope to see the ANC level rise.

10:41 AM

Anonymous Anonymous said...

We will all keep our fingers crossed. This seems to be a turning point. Maybe today Jackie's energy level will increase and the nausea will leave her. Can't wait to see you. I will be glad to come and help her pack.

11:21 AM

Anonymous Anonymous said...

THis is great news!! I hope you are able to get home and see your friends and family there.


2:41 PM

Anonymous Anonymous said...

Great news for both of you!
Know Jackie will be happy to see friends, family and Chloe!
Now when can she come to Nantucket???
Charlie misses his summer walking buddy-me too! I miss my boating with Jackie>

5:44 PM


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