Blog for Jackie Sue while at the Mayo Clinic, Rochester, MN. UPDATED. This blog now covers her progress after her mini-allo MUD transplant. Her transplant was the first one to be performed by the Mayo Clinic.

Saturday, July 01, 2006

Saturday +80 (11:30 PM)



Today was day 80. We are 4/5 of the way through the 100 day process. Another month passed today. I knew this not because it the July 1st, but rather because my electronic room key quit working. Of course it quit outside the 2nd floor security door with an armful of groceries. This meant that I had to leave the groceries, go down stairs, out the building, back through the main front door, up to the third floor office, deal with the key issue at the office, and then return to the second floor skyway security entrance and retrieve the groceries before returning to our seventh floor apartment. I hated to buy any more groceries, but Jackie can eat so few things and we were out of anything she likes. Really she doesn't like anything, but she tolerates a few things. I picked up a small watermelon, some cucumbers, and two six packs of Boost (a high calorie milk shake type drink).

We made the trip the the hospital this morning for the growth factor shot. By the time we had returned Jackie was out of energy again. She got back in bed and slept for another 1.5 hours. We then went to the Olive Garden for a late lunch. She was nauseated and ate almost none of the meal. Upon return to the apartment she became nauseated and had a great deal of stomach pain. She took a pain pill as well as some antacids and began to feel better about 7:00. We ended up watching Gone With The Wind for 5 hours. This was the first time either of us had ever seen the movie through to completion.

We will be back at the hospital at 9:00 AM for another growth factor shot. Fortunately she didn't have the excruciating headache. On Monday we will have more growth factor, blood tests, and early afternoon an appointment with the doctor. I suppose if her counts are improved she will have another decision to make with regard to a return home. I don't think either of us will get our hopes up for an early return. Even if we were to return home we would need to find a doctor (maybe her former doctor) to manage her 2 or 3 time per week blood tests. At present she gets her central line flushed with sodium citrate (SC) rather than the usual heparin. This, alone, would create problems. Even here at the Mayo Clinic it is difficult to get the SC flush. We always end up waiting for the pharmacy to mix it and send it to our area of the clinic. In Tulsa it would probably be non-existant. The switch was made from heparin to SC in the hopes that it would not decrease some of her counts. To be honest, I don't think it has made any difference. They have switched anything they could think of that might cause depleted blood counts to something else. For example, we just switched from Doxycycline to penicillin. There is a remote chance that Doxy could reduce white blood cell counts. Hopefully all these changes will result in increasing and steady blood counts.

So not much to report.

Until Later...

Bruce and Jackie
From Rochester, MN

5 Comments:

Blogger Skylark said...

You probably didn't stay up like I did to watch The Heiress, which came on after Gone With the Wind, since you have to get up early for appointments. It was very good..maybe you can catch it next time.

Here's hoping tomorrow is a good day, and that Jackie can find something in those groceries you bought that tastes good. Love to both of you.
J

1:21 AM

 
Anonymous Anonymous said...

Hope Jackie has a better day today.
Can you view fireworks from your apartment or do you have to drive somewhere?
Hang in there!
Dean and Sandra

6:44 AM

 
Blogger Jackie Sue We Love You said...

Sandra,

The fireworks are shot off on the opposite side of our apartment building. We can only see the reflections in the downtown building windows. Normally we have the better view. This happens to be the exception.

Bruce

10:43 AM

 
Anonymous Anonymous said...

HELLO, BRUCE AND JACKIE. SORRY, THAT IT HAS TAKEN SOMETIME FOR ME TO WRITE I HAVE BEEN READING FOR THE PAST 3 MONTHS AND HOPEFULLY HAVE FOUND OUT THE CORRECT WAY TO DO THIS. I HAVE SAID PRAYER AFTER PRAYER IN HOPES THAT YOU AND JACKIE HAVE A QUICK RETURN HOME. I KEEP HOPING FOR A HELICOPTER TO BUZZ BY CAMPBELL WHOLESALE JUST TO SAY HEY WE MADE IT HOME!!! WE WILL BE IN TOUCH AND TRY THIS NEW BLOGGING THING OUT MORE. YOU KNOW ME I'M ALWAY'S BEHIND TIME. JACKIE, GOD BLESS YOU AND KEEP UP THE IMPROVING. AND BRUCE YOUR ONE TOUGH MAN. BY THE WAY HOW MUCH IS THE BIKE DELIVERED TO TULSA? TAKE CARE BOTH OF YOU AND GOD BLESS YOU. M.R.& CHRISTINA

12:06 PM

 
Blogger Jackie Sue We Love You said...

To Mr and Christina,

Thanks for the comments. It is amazing how many people are keeping up with Jackie's progress. Thanks for your thoughts!

When I get back I'll be happy to take you on a helicopter ride. We will have to pencil Brokeback Martin in for a ride as well!

Bruce

11:21 PM

 

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