Monday +96 (Morning) Back to Mayo for 100 day follow up

Just to let everyone know, we will be heading back to the Mayo Clinic on Tuesday in preparation for the +100 day series of tests. Jackie will received another bone marrow biopsy, a PET scan, as well as a series of blood tests. She will also have her central line removed.

Overall, Jackie has been feeling well. She still has good days and bad days but the good days seem to now outnumber the bad days. She still has problems with food, nausea, and vomiting but overall it seems to be getting better. She is eating more things and her appetite seems to be improving. I think a lot of her problems with food stem from the medications she takes; most likely the Cyclosporine. They will begin tapering several of her drugs after 100 days. The Cyclosporine will taper over 90-180 days. Of course she could see some serious GvHD when this happens so we are still crossing our fingers!

Although we don't get daily blood counts, I feel her counts must be OK. Her energy level seems better so her RBC (Hgl) is probably improving. I was looking at her old records from before the trasplant last night. I noticed that her WBC, ANC, and platelet levels are actually better today than they were prior to transplant. Her RBC was substantially better than it is today. Prior to transplant her RBC (Hgl) was about 12.8 compared to today's 10.8.

Once we have results from the +100 day series of tests I will post them here.

Until later...

Bruce and Jackie
From Pryor